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A CHCI Medical Humanities Network / Duke Health Humanities Lab@FHI Symposium: NEURODIVERSITIES
Oct. 26-27, 2018, Franklin Humanities Institute, Duke University
Co-Sponsors: UNC Institute for Arts & Humanities & HIVE; DIBS/FHI Neurohumanities Research Group
The term “neurodiversity,” first popularized by the autism community, challenges the pathologization of neurological deviation from a conventional social spectrum of “neurotypicality.” Another branch of “neurodiversity” discourse challenges the abstraction of the ideas of “mind” and “mental” states, using tools of empirical neuroscience to dismantle binaristic divides between “brainhood” and “embodiment.” In the spirit of both, keynote speaker Ralph Savarese invites readers to be proactive in exploring literature’s capacity “to stimulate embodied experience by activating nonlinguistic areas in the reader’s brain” in a way that comes as “close to an autistic way of engaging with the world as any form of language will allow.” The Friday schedule includes a panel by Duke faculty on topics such as Flaubert’s epilepsy and the counter-narrative of injured self, the technological and phenomenological non-conscious, and psychoanalysis and neuroscience. Keynote speaker Richard E. Keller takes on yet another “neurodiversity”: the challenge to Western cultural normativity involved in the growing globalization of psychiatry since the 1990s. An exciting public event occurs on the evening of Friday October 26: the screening of the Peabody award-winning documentary Deej led by filmmaker and author DJ Savarese, using a text-to-voice synthesizer for dialogue with the audience. Saturday, the symposium shifts to interactive workshops at which faculty, students and community members are welcome. They will learn about poetry and autism in DJ Savarese’s workshop and in another workshop, address campus structures and initiatives to shore up student resiliency and to make a home for neurodiversities in universities.
More information to come. Contact Person: Katherine Berko
Summer Essay Contest: Hektoen International: A Journal of Medical Humanities.
Two awards will be presented: (1) award of $2500 will be awarded for the winning essay and (1) award of $800 for the runner-up. The contest deadline is Friday, September 14, 2018, at 12pm Central Time and must follow the article guidelines listed on the journal’s website: http://hekint.org/2018/05/30/summer-essay-contest/. Winners will be announced on the front page of the Winter 2019 issue of the journal.
After Eunuchs: Science, Medicine, and the Transformation of Sex in Modern China
Howard Chiang, Columbia University Press
From anticastration discourses in the late Qing era to sex-reassignment surgeries in Taiwan in the 1950s and queer movements in the 1980s and 1990s, After Eunuchs explores the ways the introduction of Western biomedical sciences transformed normative meanings of gender, sexuality, and the body in China. Chiang investigates how competing definitions of sex circulated in science, medicine, vernacular culture, and the periodical press, bringing to light a rich and vibrant discourse of sex change in the first half of the twentieth century. He focuses on the stories of gender and sexual minorities as well as a large supporting cast of doctors, scientists, philosophers, educators, reformers, journalists, and tabloid writers, as they debated the questions of political sovereignty, national belonging, cultural authenticity, scientific modernity, human difference, and the power and authority of truths about sex. Theoretically sophisticated and far-reaching, After Eunuchs is an innovative contribution to the history and philosophy of science and queer and Sinophone studies.
Another Person’s Poison: A History of Food Allergy
Matthew Smith, Columbia University Press
Another Person’s Poison parses the political, economic, cultural, and genuine health factors of a phenomenon that dominates our interactions with others and our understanding of ourselves. For most of the twentieth century, food allergies were considered a fad or junk science. While many physicians and clinicians argued that certain foods could cause a range of chronic problems, from asthma and eczema to migraines and hyperactivity, others believed that allergies were psychosomatic.
Gender, Health, and History in Modern East Asia
Edited by Angela Ki Che Leung and Izumi Nakayama, Hong Kong University Press
This groundbreaking volume captures and analyzes the exhilarating and at times disorienting experience when scientists, government officials, educators, and the general public in East Asia tried to come to terms with the introduction of Western biological and medical sciences to the region. The nexus of gender and health is a compelling theme, for this is an area in which private lives and personal characteristics encounter the interventions of public policies. The nine empirically based studies by scholars of history of medicine, sociology, anthropology, and STS (science, technology, and society), spanning Japan, Korea, China, Taiwan, and Hong Kong from the 1870s to the present, demonstrate just how tightly concerns with gender and health have been woven into the enterprise of modernization and nation building throughout the long twentieth century.
A Medical History of Hong Kong: 1842–1941
Moira M. W. Chan-Yeung, The Chinese University Press
This book tells the fascinating story of the development of medical and sanitation services in Hong Kong during the first century of British rule and how changing political values and directions of the colonial administration and the socioeconomic status of Hong Kong affected the policies of development in these areas. It also recounts how the bubonic plague of 1894 changed the government’s laissez-faire attitude towards sanitation and public health and began sanitary reforms and developed public health infrastructure.
The Rise of Autobiographical Medical Poetry and the Medical Humanities
Johanna Emeney, ibidem Press
In this fascinating book, Johanna Emeney examines the global proliferation of new poetry related to illness and medical treatment from the perspective of doctors, patients, and carers in light of the growing popularity of the medical humanities. She provides a close analysis of poetry from New Zealand, the U.S., and the U.K. that deals with sociological and philosophical aspects of sickness, ailment, medical treatment, care, and recuperation.
Buddhism and Medicine: An Anthology of Premodern Sources
Edited by C. Pierce Salguero, Columbia University Press
From its earliest days, Buddhism has been closely intertwined with medicine. Buddhism and Medicine is a singular collection showcasing the generative relationship and mutual influence between these fields across premodern Asia. The anthology combines dozens of English-language translations of premodern Buddhist texts with contextualizing introductions by leading international scholars in Buddhist studies, the history of medicine, and a range of other fields.
Exhaustion: A History
Anna Katharina Schaffner, Columbia University Press
Medical, cultural, literary, and biographical sources have cast exhaustion as a biochemical imbalance, a somatic ailment, a viral disease, and a spiritual failing. It has been linked to loss, the alignment of the planets, a perverse desire for death, and social and economic disruption. Pathologized, demonized, sexualized, and even weaponized, exhaustion unites the mind with the body and society in such a way that we attach larger questions of agency, willpower, and well-being to its symptoms. Mapping these political, ideological, and creative currents across centuries of human development, Exhaustion finds in our struggle to overcome weariness a more significant effort to master ourselves.
The Facts of Life
Paula Knight, PSU Press
April’s dreams of motherhood come true before too long, but as Polly enthusiastically builds a career, her desire and hope to start a family become less firmly ingrained. Her struggles with chronic illness also have an effect on her choices and relationships, and she wonders whether motherhood will be in the cards for her at all. Soon she meets Jack, and together they start a fraught journey, first debating whether parenthood is right for them and then facing the heartbreak of repeated miscarriages and the effects of illness on their ability to have a child. Through it all, Polly is forced to reexamine what family can mean in a society that so often associates family—and womanhood—with children.
Beautifully drawn and poignantly honest, The Facts of Life is a funny, sometimes painful graphic memoir that explores what it takes to be a woman, a partner, and a mother . . . or not.
Narrative in Social Work Practice: The Power and Possibility of Story
Editors: Ann Burack-Weiss, Lynn Sara Lawrence, and Lynne Bamat Mijangos, Columbia UP
Narrative in Social Work Practice features first-person accounts by social workers who have successfully integrated narrative theory and approaches into their practice. Contributors describe innovative and effective interventions with a wide range of individuals, families, and groups facing a variety of life challenges. One author describes a family in crisis when a promising teenage girl suddenly takes to her bed for several years; another brings narrative practice to a Bronx trauma center; and another finds that poetry writing can enrich the lives of people living with dementia. In some chapters, the authors turn narrative techniques inward and use them as vehicles of self-discovery. Settings range from hospitals and clinics to a graduate school and a case management agency. Throughout, Narrative in Social Work Practice showcases the flexibility and appeal of narrative methods and demonstrates how they can be empowering and fulfilling for clients and social workers alike.
Politics, Piety, and Biomedicine: The Malaysian Transplant Venture
Jenny Schreiber, Transcript-Verlag
The discourse on transplantation and brain death has become emblematic of conflicts between certain perspectives on adequate medical care, death, and dying. Scientific and religious, modernizing and traditional as well as academic and popular voices debate how to approach these topics. This work captures the heterogeneous and often contradictory views on the Malaysian transplant venture and the treatment option of end-stage organ failure from the Malay and Chinese population, physicians, state officials, and Muslim, Buddhist, and Daoist clergy. It also addresses vital issues as to the use of and extent to which biomedicine and medical technology in contemporary Malaysia actually benefits its people.
Taking Turns: Stories from HIV/AIDS Care Unit 371
MK Czerwiec, PSU Press
A shining example of excellence in the treatment and care of patients, Unit 371 was a community for thousands of patients and families affected by HIV and AIDS and the people who cared for them. This graphic novel combines Czerwiec’s memories with the oral histories of patients, family members, and staff. It depicts life and death in the ward, the ways the unit affected and informed those who passed through it, and how many look back on their time there today. Czerwiec joined Unit 371 at a pivotal time in the history of AIDS: deaths from the syndrome in the Midwest peaked in 1995 and then dropped drastically in the following years, with the release of antiretroviral protease inhibitors. This positive turn of events led to a decline in patient populations and, ultimately, to the closure of Unit 371. Czerwiec’s restrained, inviting drawing style and carefully considered narrative examine individual, institutional, and community responses to the AIDS epidemic—as well as the role that art can play in the grieving process.
Aliceheimer’s: Alzheimer’s Through the Looking Glass
Dana Walrath, PSU Press
Aliceheimer’s is a series of illustrated vignettes, daily glimpses into their world with Alzheimer’s. Walrath’s time with her mother was marked by humor and clarity: “With a community of help that included pirates, good neighbors, a cast of characters from space-time travel, and my dead father hovering in the branches of the maple trees that surround our Vermont farmhouse, Aliceheimer’s let us write our own story daily—a story that, in turn, helps rewrite the dominant medical narrative of aging.”
Being Human in a Buddhist World: An Intellectual History of Medicine in Early Modern Tibet
Janet Gyatso, Columbia University Press
Through its unique focus and sophisticated reading of source materials, Being Human adds a crucial chapter in the larger historiography of science and religion. The book opens with the bold achievements in Tibetan medical illustration, commentary, and institution building during the period of the Fifth Dalai Lama and his regent, Desi Sangye Gyatso, then looks back to the work of earlier thinkers, tracing a strategically astute dialectic between scriptural and empirical authority on questions of history and the nature of human anatomy. It follows key differences between medicine and Buddhism in attitudes toward gender and sex and the moral character of the physician, who had to serve both the patient’s and the practitioner’s well-being. Being Human in a Buddhist World ultimately finds that Tibetan medical scholars absorbed ethical and epistemological categories from Buddhism yet shied away from ideal systems and absolutes, instead embracing the imperfectability of the human condition.
Hole in the Heart: Bringing Up Beth
Henny Beaumont, PSU Press
Hole in the Heart is a moving and refreshingly honest look at raising a child with special needs. Henny doesn’t shy away from the complicated emotions and challenges that affected her and her family. But her story also shows that fear can be the greatest of these challenges—and the most rewarding to overcome. Henny and Beth’s journey speaks not only to parents of children with special needs and the medical and care professionals they interact with, but to all parents who wonder whether their child is loved enough and is reaching his or her potential.
Medical Philosophy: A Philosophical Analysis of Patient Self-Perception in Diagnostics and Therapy,
David Låg Tomasi, ibidem Press
This innovative book clarifies the distinction between philosophy of medicine and medical philosophy, expanding the focus from the ‘knowing that’ of the first to the ‘knowing how’ of the latter. The idea of patient and provider self-discovery becomes the method and strategy at the basis of therapeutic treatment. It develops the concept of ‘Central Medicine’, aimed at overcoming the dichotomies of Western–Eastern medicine and Traditional–Integrative approaches. Evidence-based and patient-centered medicine are analyzed in the context of the debate on placebo and non-specific effects alongside clinical research on the patient-doctor relationship, and the interactive nature of human relationships in general, including factors such as environment, personal beliefs, and perspectives on life’s meaning and purpose. Tomasi’s research incorporates neuroscience, psychology, philosophy, and medicine in a clear, readable, and detailed way, satisfying the needs of professionals, students, and anyone who enjoys the exploration of the complexity of human mind, brain, and heart.
Me Medicine vs. We Medicine: Reclaiming Biotechnology for the Common Good
Donna Dickenson, Columbia University Press
Personalized healthcare—or what the award-winning author Donna Dickenson calls “Me Medicine”—is radically transforming our longstanding “one-size-fits-all” model. Technologies such as direct-to-consumer genetic testing, pharmacogenetically developed therapies in cancer care, private umbilical cord blood banking, and neurocognitive enhancement claim to cater to an individual’s specific biological character, and, in some cases, these technologies have shown powerful potential. Yet in others they have produced negligible or even negative results. Whatever is behind the rise of Me Medicine, it isn’t just science. So why is Me Medicine rapidly edging out We Medicine, and how has our commitment to our collective health suffered as a result?
In her cogent, provocative analysis, Dickenson examines the economic and political factors fueling the Me Medicine phenomenon and explores how, over time, this paradigm shift in how we approach our health might damage our individual and collective well-being. Historically, the measures of “We Medicine,” such as vaccination and investment in public-health infrastructure, have radically extended our life spans, and Dickenson argues we’ve lost sight of that truth in our enthusiasm for “Me Medicine.”
The Walking Med: Zombies and the Medical Image
Edited by Lorenzo Servitje and Sherryl Vint, Foreword by Steven C. Schlozman, PSU Press
The Walking Med brings together scholars from across the disciplines of cultural studies, medical education, medical anthropology, and art history to explore what new meanings the zombie might convey in this context. These scholars consider a range of forms—from comics disseminated by the Centers for Disease Control and Prevention to graphic novels and television shows such as The Walking Dead—to show how interrogations of the zombie metaphor can reveal new perspectives within the medical humanities.